in sickness and in health

The last couple of weeks have been strange and difficult. Middle of the night ultra-anxiety; big, unattractive belly-shaking tears of fear and panic; excessive contemplation of death: all that. And not my own death either. Her death.

She developed this horrible skin condition which is apparently quite common but I’d never heard of. Hives or urticaria. She had it chronically bad: red marks, weels and inflammation from the scalp of her head, up her neck, across her face, all the way across her body to the balls of her feet. It was horrific. Something was eating or at least mutating my wife.

She woke up in the middle of the night crying at the pain and discomfort. Utterly fucking terrified, I applied a cold towel compress and vacated the room, eliminating my own body heat from her irritation. I walked down the hall to the sofa where I sat, read everything I could find on the internet about this thing and cried myself to sleep.

Over the course of two weeks and fluctuating levels of distress and discomfort, we went back and forth to see GPs, and dermatologists at the hospital. I spent several consecutive nights on the sofa, battling manfully against a snotty cold, suffering massive worry, catastrophising hugely, drafting her funeral eulogy in my head, wondering what my life would be like after she died. I pictured myself walking a dog and that being enough. It wasn’t just in the middle of the night when I wondered about her dying. I thought about it all the time, this constant sinister ticking: butwhatifshedies? butwhatifshedies? butwhatifshedies?

I didn’t want to lose her. It took me a largely miserable decade of being a loner to find her. We are not long married and planning a future, thinking about buying a house, getting a mortgage, maybe even (finally) a dog, and possibly reproducing if we can.

Did she have fundamentally flaky genes, having lost her mother in middle age? Will she ultimately not make it past a similar stage before something strikes her down? Will health deny us the chance to grow old together, to become old people? I always wanted to become a properly old person. Nobody has that guarantee, I know – health and chance and anything at all can shit over your life for no good reason; but all the same I really hope we get old together.

At its worst, walking down the street and seeing old people would make me mildly upset. As would seeing babies and gleeful children. Would we be able to have them? Really? Would we ever be parents or would there be further medical complications?

She has complicated thyroid issues and Grave’s disease (not exactly a promising sort of name, even for a disease). This means she’s predisposed to the whole range of auto-immune disorders. You don’t want to go Googling that stuff. With urticaria, there’s a general dearth of medical knowledge and research. Also it’s idiopathic, so you might easily never know the cause of your outbreak, whatever you try and however you eliminate things from your diet or routine. (We’ve tried a lot). There are informed sounding medical blogs and self-published books by American sufferers, but little more.

Over the last day or two, since the last hospital visit, it has mercifully eased and we are back sleeping together. But the fear will probably never go. Take nothing for granted, try to enjoy every tiny nice moment. You never know, it might all be fine.

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